6 and 7 September 2023
During an inspection of Gender identity services
This was a short announced, focused inspection of the Gender Identity Development Service (GIDS) at the Tavistock and Portman NHS Foundation Trust.
The Gender Identity and Development Service (GIDS) is provided by the Tavistock and Portman NHS Foundation Trust. The service is based at the Tavistock Centre in London. The service has a regional centre in Leeds and satellite clinics in Exeter, Bristol and Birmingham.
The service is commissioned by NHS England (NHSE). It is a national specialist service and is the only service available in England for children and young people with gender dysphoria. The service also treats children and young people from Wales.
Since our last inspection in October 2020, NHS England have been in the process of re-designing how services for children and young people with issues of gender incongruence are offered across England, following recommendations from the Cass Review and acting on the findings of the CQC’s previous inspection. The GIDS will be closed. New regional providers will be established throughout England. This implementation which was initially due to take place in April 2023 has been delayed to March 2024.
To support the transition of service provision to the first new providers, responsibility for managing the GIDS waiting list has now transferred completely to NHS England, who now holds a single national waiting list from which the new providers will see children and young people. NHS Arden and GEM Commissioning Support Unit (CSU) is supporting NHS England in managing the national waiting list. Nottinghamshire Healthcare NHS Foundation Trust provide limited clinical input.
Since October 2022 GIDS has not been accepting any new referrals and are not involved in the management of the waiting list. Therefore, the previous breaches in relation to the waiting list identified at our last inspection are no longer valid. A condition on the trust to keep CQC updated on progress with managing the waiting list is removed as this is not applicable.
The service is only managing open cases. The trust will continue to hold clinical responsibility for these patients until they are either discharged or transferred to a new provider by 31 March 2024.
The Tavistock and Portman NHS Foundation Trust provide outpatient psychosocial services only, and GIDS provides outpatient services for young people experiencing difficulties with their gender identity development. Any medical treatment is provided by other acute healthcare providers and the Tavistock and Portman NHS Foundation Trust refer into these as required. Medical treatment involves the prescribing of medicines that suppress the production of endogenous sex hormones. The endocrinology departments at The Leeds Teaching Hospitals NHS Trust (Leeds General Infirmary) and University College London Hospitals NHS Trust provide all medical interventions for GIDS patients.
We did not re-rate the overall service following this focused inspection. Our last inspection of GIDS was in October 2020. Following the inspection, we rated the service as inadequate. We rated the domain of safe and effective as requires improvement. We rated responsive and well-led as inadequate. We rated caring as good.
We undertook this inspection to follow up on the actions taken by the service to address some of the breaches of regulation from our previous inspection and to see what improvements had been made. As the transfer of the young people to the new services had taken longer than expected we wanted to check that young people currently receiving care and treatment under the GIDS were receiving safe care.
Between July 2022 and January 2023, the trust had experienced a malware attack affecting the trust’s electronic patient record system. We took this into account during our inspection and assessed how the service had managed this. This issue had affected several NHS and independent health providers.
We did not rate the service at this inspection. We found:
- The service had made some improvements since our last inspection in October 2020, but further work was needed to fully address the breaches of regulation and to ensure that improvements were embedded and sustained.
- The service had introduced a transfer of care and risk form that had been added to the electronic patient record. Staff completed an initial assessment of risk at the first consultation. All open cases had been rated for risk (using a red, amber, green system) so that clinical staff had an overview of individual risk.
- Safeguarding processes had been strengthened. All clinical and non-clinical staff had undertaken role relevant safeguarding adults and children training. Staff reported that the culture around reporting safeguarding had improved.
- Capacity and consent for young people receiving medical treatment was clearly recorded. All young people undergoing medical treatment had a care plan in place.
- Leaders had the skills, knowledge and experience to perform their roles. They fully understood the issues, priorities, the substantial challenges the service faced and were taking action to address them.
- Staff reported that the culture within the service was improving. They reported feeling more confident in raising any concerns. Staff were supported and involved in contributing to discussions about the service.
- Work was in progress to strengthen governance arrangements, leaders acknowledged that further development work was required to ensure previous breaches of regulation were addressed in full and improvements were sustained and embedded within the service.
However:
- The service was experiencing some challenges with staffing. There were high rates of staff attrition due to the forthcoming closure of the service. Staffing levels at the time of the inspection were sufficient to meet the needs of young people receiving treatment. The trust were closely monitoring the workforce and any potential risks during the time up to the transfer to new providers in March 2024.
- Work was in progress to address the ongoing shortfalls with record keeping. Records were not always of good quality. The service had been impacted by the care notes outage and difficulties with the care notes recovery programme.
- Staff were still not recording risk management plans clearly in the patient record.
- Young people not receiving medical treatment did not have a care plan in place.
- Capacity and consent was not recorded for young people that were not undertaking medical treatment.
- Although improvement actions had been identified for most audits, completed changes in practice had yet to be fully embedded.
How we carried out the inspection
During the inspection visit, the inspection team:
- visited the service in London to look at the quality of the environment.
- spoke with 3 parents of young people using the service and 1 young person who was using the service. Interviews with carers and the young person were completed by telephone. Our final carer interview was on 22 September 2023.
- spoke with the trust Chief Nursing Officer, Chief Clinical Operating Officer and the Associate Director of Quality.
- spoke with the GIDS safeguarding lead, the clinical director of operations, associate clinical service director and interim clinical governance lead.
- spoke with 12 other staff members across the multidisciplinary team.
- looked at 16 care and treatment records.
- looked at a range of policies, procedures and other documents relating to the running of the service.
You can find further information about how we carry out our inspections on our website: https://www.cqc.org.uk/what-we-do/how-we-do-our-job/what-we-do-inspection.
What people who use the service say
We spoke with 3 carers of young people using the service and one young person. Carers overall were positive about staff. They felt involved and informed about their child’s care and treatment where appropriate. The young person reported that they were involved in their care and treatment.
All expressed frustration at the system, long waiting times, communication issues between GIDS and adult Gender Identity Clinic services and lack of any information from NHS England about future services and any on-going care.